Tuesday, February 9, 2021

THE BENCH


THE BENCH


During my weeks of radiation at Duke I had some really difficult, lonely moments. I have written about this experience before but was reminded of it Friday and it has been overwhelming for the past days. One morning while waiting for the valet to bring my car after treatment, a nice gentleman sat beside me on the bench and started chatting. We had passed each other many early mornings headed to the same place, for the same reasons and he always had a calming presence and smile. I noticed this from the first time I saw him, maybe because I felt NONE of those feelings at the time myself. I was sad, scared and alone. Over the next weeks, the time I spent getting to know him and his wife were truly life changing. Spending time with them helped my difficult time at Duke seem less frightening. I’ve always considered him my “Angel” who came to my bench and into my life that day because his strong presence was needed so badly. I needed his positive outlook in those days to help change my view of the experience I was going through. I needed his strength, faith and calming heart sitting beside me each morning on that bench. I looked forward to conversations with him and his wife, Kathy. They both were such a positive influence, and still are today. Even while he was fighting for his health and his life, they managed to continue their lives, careers and responsibilities, while being together. Cancer did not dictate their life like it seemed to do mine at the time. In fact, their influence led me to finish my degree during that time. I needed one more class for a degree after many stops and starts to my college journey. I completed it online while at Duke during those months.  Several years ago, when I found out his battle was over I felt a tremendous and overwhelming loss. I realized when I attended his funeral that while he may have been my special Angel in my little world, that was just who he honestly was. He impacted so many lives in the same positive, loving way. There are so many Larry stories similar to the one I have. I’m thankful for mine!

Many days I still think of him or his wife. Some days, I remember some little thing he said to me during that time and I feel his positive energy or I remember conversations with his wife and her encouraging words for me. She barely knew me, yet made me feel like she was listening to and believed in me, at a time I didn’t believe in myself, or believe in much of anything quite honestly. Over the past months I have not felt that positive presence in my life. I’ve let politics, negative behavior and a pandemic take all of my happiness away.  I feel trapped and miserable working from home and worrying anytime I leave the house. Covid isolation has not been good for my mental health or my physical health. For a time I was in a downward spiral and afraid I couldn’t stop it before I crashed. Witnessed by many on social media and my family. I’ve been scared to death of a virus taking my life when I’ve worked so hard battling cancer multiple times to save it. I lost myself somehow in all of the social injustice, political hate and fear. Then on Friday afternoon, I was thrown a curve ball that I was not prepared for.  I went to Duke thinking that my C journey was finally coming to an end. Prepared to say goodbye to treatments, scans, needles and nurses. It has been a long 10 years between several serious illnesses and recoveries. I was prepared to say “see you next year” to my care team and celebrate. But that isn’t what happened. I got some news that wasn’t what I expected and so it seems my battle will continue. I’ll have scans and tests on Thursday and know more afterward, but right now I’m just numb and frankly tired of fighting. 2021 should’ve been my “BYE CANCER” year.  But it started with some continuing difficulties from my esophagectomy and a recurring skin cancer diagnosis. Now I have a likely breast cancer recurrence. After receiving this unexpected news, I had to fight to keep it together and get through the appointment. I felt like I was in the middle of a nightmare and couldn’t wake up. As I waited for Spencer to pick me up outside of the cancer center, I found myself on my and Mr. Larry’s bench and this time I was alone. I looked at the empty space beside me and wished he were sitting there to give me the positive words I needed at that moment. What would he tell me? Would he show me how to rediscover strength or faith that I hoped I’d never need again? I could almost feel him beside me, but then saw the empty spot where he used to sit. I felt a flood of emotions. I have learned when you pay attention to experiences in your life, your “angels” will surround you when they are needed, even if you can no longer actually see them with your eyes. I wrote all of this to allow myself to face the days ahead with knowledge of my history, my previous strength when needed to overcome my battles and my ability to not give up, even when I feel like I have no fight left in me. I do appreciate prayers, positive energy and thoughts in the coming days. Sometimes life is funny and makes you laugh. Sometimes life is cruel and makes you cry. But I have to remember life gives you memories, experiences and people to help you get through it all. 🙏🏼💕

Sunday, January 3, 2016

Epiphany and Gifts - A message of Hope.

This is the text from the message I delivered to my church family on January 3, 2016. Please ignore the grammar as this is more of a "notes" than an exact presentation. I went off script and basically used this as an outline, but I touched on every part of this text.  It was an honor to speak and hopefully someone came away with something positive from the experience.  



Good morning and Happy New Year.  Today is Epiphany Sunday.  This time during the Christmas Season represents the gifts brought by the Wise Men to the manger.  It also marks the end of the Christmas season.  When I read about this I thought about the Christmas season in today’s time verses the Christmas season during the time of the birth of Jesus.  We think of Christmas with excitement, anticipation leading up to one specific day – Christmas Day.  Then it is often followed by a sudden letdown, like someone bursting a bubble.  Before this day, we have special church services, parties, gift giving and goodies, but once the presents have been opened and we have had too much food and celebration all in one day, we are left with a mess to clean up, sometimes too many bills and stress from overindulging for just one day.  But according to biblical history.  The Christmas season BEGINS with Christmas Day, the day of Jesus’ birth and continues afterward for 12 days, celebrating the joyous times ending with the epiphany, the journey to bring gifts to a special baby.  So today marks the last Sunday of the Christmas season and the delivery of special gifts. 

Back in the fall, Pat stopped me as I was leaving a church dinner and said, “You need to tell your story and I would like for you to do that on January 3rd.”  This threw me for a loop and I just looked at her and said, “Umm, I don’t think I can do that.”  She had said this to me several times before while visiting me after surgeries or while I was hospitalized, but it never crossed my mind that there was even a “story to tell.  She asked me to think about it and I promised I would, but I had absolutely no intention of speaking in front of a crowd, even my church family whom I love dearly.  I have recently been struggling with horrible anxiety and panic attacks, I’ve been at probably the lowest point in my life over the past few months, I’m emotional and more dramatic than usual, which can be really dramatic. I’ve had days when I just struggled to get out of bed and days when I truly felt like giving up on life itself.  I was given hormone medicine to deal with my cancer, then because of a reaction suddenly taken off of them, leaving me all over the place, emotionally.  I often cry for no reason, yell at those who love me for no reason, seem irritated for no reason and panic to the point of not being able to breathe. I’m not the person that should be speaking in front of a crowd right now.  But then one day, several weeks after I was asked, I sent Pat a text message and told her that I would speak on January 3rd if she still needed me to.  As soon as I pressed send on the phone, I thought what in the world have I done?  I actually sent this in the middle of the medication reaction which caused me to do many irrational things over several days.   But, Pat was excited and I didn’t’ have the heart to tell her it was a mistake.  So here I am, a nervous wreck, up here speaking to you and I hope that I will get through this without having an anxiety attack and that you will come away with something positive by the end.

The past few weeks have been a struggle for me trying to decide what to say, AND what not to say.  I met with Pat just before Christmas because I still had no idea what I was supposed to speak about.  When we met, I told her that I just didn’t know what she expected me to say. She told me that the Sunday I would be speaking is Epiphany Sunday, which was perfect because she wanted me to speak to you about the gifts I have been given over the past several years.  I thought, WELL SHE HAS the wrong person.  I’m sure the look on my face threw her for a loop but I thought she must be crazy to think that I had been given any GIFTS in the past several years.  She had been right there and witnessed all that I have been going through and she wanted me to talk to you about gifts?

Who am I to speak about some wonderful gifts I’ve received?  I told her that I just didn’t think I could do this because right now in my life I’m not really in a good, positive place.  If I stand here and speak honestly, I feel broken.  I feel bitter sometimes and angry on many days.  I’m tired, I feel physically sick most of the time, and weak and frustrated.  I’ve been diagnosed with cancer twice in just over three years.  I’ve had three major surgeries, nearly died and had so many follow up procedures that required being put to sleep that I’ve lost track.  I could talk about losing my esophagus or part of my breast.  I could talk about going months without being able to eat or drink, with a feeding tube attached to my body or living with several chest tubes draining because of excessive fluid in my lungs.  I could talk about throwing up almost every day over the past years, or the exhaustion and sick feeling from radiation.  I could talk about being displaced from a job that I loved.  I could talk about all of the negative things.  It is so easy to have a pity party, but I have to talk about gifts? Pat smiled and said, “Yes, speak about where you are right now in your life because sometimes the gifts come when we are most broken”. 

Over the next days I began to really think about our conversation and what gifts I may have not recognized.  So I am going to tell you about my gifts in the midst of my struggles.

In 2012, I was diagnosed with Esophageal Cancer, then Barrett’s Esophagus.  I began a rollercoaster ride of physical and emotional ups and downs that many people could not comprehend.  Three years later, just as I was beginning to feel like my life was on the way back to “normal”, I was diagnosed with Breast Cancer.  The first cancer nearly killed me physically, the second diagnosis has nearly killed me emotionally. 

There are so many cliché’s, catchphrases and symbols related to cancer.  These are often attempts to help make the person struggling with cancer feel better about their situation.  My first experience with cancer was so different from my second.  The first time, my situation was rare and there weren’t many resources to help me learn what to expect. Things moved so quickly after my diagnosis that I didn’t’ have time to think, or process what was happening.  I didn’t have much opportunity to experience the whole “cancer support world”.  I had many surgeries, things went terribly wrong and I was left without cancer, but fighting for my life due to the aftermath of having your esophagus removed, and having things go “wrong” during the procedure.  When I was diagnosed with breast cancer, I felt like somebody hit me between the eyes and knocked me to the floor.  When I came to terms with hearing the word “cancer” again so soon, I thought “OK, you know what to expect, let’s get moving”.  I soon realized that breast cancer is completely different from esophageal cancer.  Things moved much slower with breast cancer.  I was diagnosed in May, and left waiting for what seemed like an eternity for a plan of treatment.  The first illness, I had someone with me almost the entire time, it was almost mandatory.  It seemed like time stood still while I recovered.  This time, I felt so alone.  I was on at a stand still, while everyone else’s life continued on without me.  Others lives do not stop because you have cancer and that was difficult for me to handle.   I know that I was not truly alone in this, but I felt lonely and lost.  During this waiting period was when I began to be overwhelmed with the cancer cliché’s – and I began to despise them. Some of them were:

It’s your journey – NO – It is like someone has kidnapped me, locked me in the trunk and is taking me to a place I’ve been before and would rather not return to.

Or

That which doesn’t kill you makes you stronger – No, I was strong the first time, this time I’m weak, scared and feel like I don’t have it in me to fight.

Or

Fight like a girl – Well I was always told that “girls don’t fight” so where does that fit in?

Or

You’re a Survivor – Ok that one is true, I AM just trying to survive through this nightmare, but I don’t think that is what they mean.

And then there was so much pink – pink shirts, pink hats, pink decals and stickers and bags.  I tried so hard to buy into the “pink”.  I had pink shirts and notebooks and pens and bags and bracelets, but the truth is, I never liked the color pink before my cancer and now the color pink just makes me sick to my stomach sometimes.

And I’ve heard a million times “You look great!” and “You don’t look sick”.  I know it is always well meaning and positive, but sometimes I’d just like to show you my insides so you can see how messed up I really am.  Trust me, you wouldn’t want me to “LOOK” as sick as I am.

So here I am on this “journey”, trying to convince myself that I’m strong and I’m a fighter and a survivor, all the while I feel sick and frustrated and angry and scared. This was not the life I have dreamed of.  And it is not a battle I want.  I’ve always struggled with being a negative thinker.  I’ve made so many mistakes in my life.  I’ve failed over and over again.  I have a job that makes me feel stuck with little chance for advancement.  I have a lot of uncertainty in my relationships and I have been battling with cancer for almost 4 years. I feel beat up and like a failure most of the time.  It’s so easy for me to recognize the negative, but I’ve had to work to change the way I normally think over the past days so that I can get to a place where I can tell you about some of the gifts. 

1.     When I returned to work after my first illness, I was placed in a different job.  I have struggled with this because I felt like I was being punished for being sick.   My dream had always been to have a job that allowed me to travel so as I felt healthier, I thought more about finding a new job.  I stumbled across a job that really intrigued me.  It was traveling as an instructional software coach.  I had teaching experience and had given software instruction to adults, so I was excited at this possibility.  I applied for the job and went through 3 interviews, making it to the final decision.  I didn’t get the job.  As upsetting as it was, I now realize that God was giving me a gift.  I have a stable job, where I’ve been working for over a decade.  I have health insurance and accumulated sick and paid days over time, which I would desperately need later when I was diagnosed a second time with cancer.  I had no idea at the time, but now I see this was a gift from God. I'm thankful to have my job.

2.     There have been times when I’ve had no idea how I was going to pay bills, or financial obligations, especially since being ill.  I’ve worried many days and nights about my debt.  God has provided for me each time that I was to the point of not having enough.  I’ve received anonymous donations in mailed cards, gift cards for restaurants during days I was in radiation and waiting for my paycheck to arrive.  I was given a donation from my church family just as I was trying to figure out how to pay for a hotel during radiation.  This is only an example of the wonderful financial gifts I’ve received that eased the burden of the past few years. A gift from God, through caring friends and even strangers.

3.     I am a single mother. Raising a child alone is not easy, believe me sometimes it was a huge struggle and I’ve felt like a failure more times than I want to admit. God gave me the gift of a beautiful daughter that I was able to provide for and help guide into a wonderful, successful young woman.  Looking at her now, I can see that this was God’s most precious gift to me.  I’m so thankful for this gift. 

4.     My parents sacrificed tremendously for me.  Always seeming to help me out of bad decisions and the obstacles of life as a single mom.  They were there without fail during my first illness and gave so much.  When I was diagnosed a second time, I was stubborn, trying to handle it alone because I felt like such a burden.  This stubbornness and determination lead me to feel very alone and abandoned during my second cancer situation.  God gave me the gift of parents who are still with me and have given unselfishly throughout my life and most recently during my illness.  They NEVER fail to be there for me supporting me and helping me along the way.

5.     I was originally sent to UNC after my first diagnosis.  I decided to get a second opinion and called Duke.  With that phone call, God gave me the gift of a caring, knowledgeable, medical team that would see me through years of healing.  In particular, he led me to a nurse practitioner named Kathy, who has been my biggest advocate and medical blessing through all of this.  When I was diagnosed with the breast cancer, the first person I contacted was Kathy at Duke.  Even though this wasn’t her department, she immediately formed a team of surgeons and oncologists to help me through my breast cancer. Kathy has been a blessing to me from the very beginning and has become a lifelong friend.  God gave me the gift of Kathy being the one who answered my call to Duke that first day.  She listened to my story, took my case to the right doctors and has seen me through every little medical issue since then.  

6.     God has also given me many angels on earth during this struggle.

The first was a lady who contacted me on Facebook just after my first diagnosis.  She is well known in the community, although I had never met her before.  She sent me a heartwarming message and asked to meet me.  Just prior to my first surgery, my mom drove me to a parking lot in uptown Rockingham, where I met Cathy Wilson.  She gave me a devotional book, prayed with me and promised to keep me in her thoughts.  She has steadfastly been there to encourage me, pray for me and offer her loving support, even in the midst of her own struggles and those of her family.  She is a gift.

The second angel on earth was the emergency room doctor at Moore Regional the night I was taken in, near death.  Dr. Strobel, sat outside of my door, constantly on the phone with Duke and worked tirelessly, along with his team to keep me alive until the helicopter arrived.  There were times that even he was fearful I wouldn’t make it, but he never gave up on me.  A year after that night, I learned that Dr. Strobel not only had his church family pray for me during the weeks after that night, but he continued to pray for me with his family and check on my progress along the way through a mutual friend.   I’m alive today because of the gift of Dr. Strobel.

Along with Dr. Strobel that night in the ER, was another angel on earth named Beth.  I didn’t remember Beth from that night.  The doctors told me that they were going to put me on life support because I was struggling too hard on my own.  They couldn’t get me vented, and had to call the heart center.  I was completely out of it to the point that I literally saw lights and was speaking to my Aunt who had passed away recently. I think I might have been pretty close to the end.  I don’t remember anything after them telling me they were putting me on a ventilator.  Almost a year after that night, I ran into an old childhood friend, Beth.  She began talking about the night I was in the ER and how bad it was.  I learned that my childhood friend Beth and the nurse Beth were the same person.  She not only helped get the ventilator placed, but sat by my side until the helicopter arrived.  Beth is a gift.

Back in the summer, my radiation was at 7am each morning, five days a week for a month.  I was miserable from the beginning.  I didn’t want to be there.  I whined to myself how this wasn’t fair and I was just angry with the world.  I went every day and tried to put on the brave face and smile, all the while feeling bitter.  I watched people in the waiting room, with loved ones and friends and I always felt so alone.  I would fight back tears so that the radiation team wouldn’t know how difficult this was for me.  One morning after a tough appointment I was waiting for my car.  I was irritated and beginning to get horrible anxiety.  I sat on a bench and could just feel the anger and resentment building as I waited for the valet to bring my car.  A man who I had spoken to each morning in passing came and sat beside me. His name was Larry.  Our appointments were back to back so we saw each other every morning and always said hello.  We began watching people around us as we waited.  I was still irritated, but noticed a calmness in the man beside me.  We watched as people were arguing with the valets and security about their cars and the traffic and how busy it was and how slow they were.   Larry, in his calm voice looked at me with a big smile and said, “I guess they’ve never dealt with cancer like us, or they would realize how those little things don’t matter”.  I realized how I had been just as guilty of letting the little things get to me as all of those around me, even as I was battling cancer.  Larry and I both were dealing with cancer, but Larry was so positive and I was only seeing the negative.  Larry, his wife and I ended up spending quite a bit of time together during those weeks.  Both of them had a positive, calming outlook that carried me through some tough days.  As I got to know them, and opened up to them about my life I realized that although our lives outside of cancer were completely different, we shared a very strong bond.  I still keep in touch with them today and know that God sent Mr. Larry and Mrs. Kathy to me as a gift.

7.     God has given me the gift of placing Spencer in my life.  He also has a calming, positive outlook on things which is such a good balance to my negative, anxiety, overreacting self.  I’m not sure how he can sometimes handle me when I’m angry at some little thing completely out of my control, or when I spontaneously burst into tears for no reason, or when I am ready to just give up and move on because things aren’t perfect.  No matter what, he always remains calm, and is so sure everything will be ok, even as I tell him how wrong he is.

God has given me a loving church family, friends that continue to stay in my life even when I retreat and put up walls, and the strength to continue to face every obstacle placed in front of me.  These are just a few of the gifts I have been given through this journey and I’m so thankful for all of them.

So Pat was right – I have received many gifts from God. These gifts may not have been wrapped in pretty packages, or placed right before me so that they were instantly recognizable as gifts, but they are still most precious.   I hope that one day, as I continue on this path, I will feel less broken and more like things are coming into a good positive place in my life. I’m a work in progress and I’m still pretty wrecked, but as I continue to heal both physically and emotionally, and as I move forward, I pray that God continues to send these wonderful life gifts my way and I also pray that I find the wisdom to recognize them when they are placed in front of me.

In closing, I’d like to say that we all have struggles and things we are dealing with.  My struggles are no worse than the things you may be going through.  As we transition into a new year, with a fresh start and clean slate, I hope that we can all better recognize the true gifts that God places at our feet, just as the wise men traveled to place such important gifts at the foot of the manger, so long ago.  Let’s bow our heads as I say a prayer:

Dear Lord,
As we go out into your world, and continue our journey through life, Lord please help us to remember that not all of your gifts are wrapped in pretty paper.  Give us thankful eyes to see all of your wonderful gifts in disguise.  Amen





Tuesday, April 17, 2012

Blessings!


I plan to write more about my experience in the hospital when I'm stronger.  Today, I just wanted to write something about blessings.

I have learned that blessings can come in the most unexpected forms, from the most unexpected places and the most unexpected people.  Sometimes we recognize blessings right away.  Sometimes it isn't until much later that we realize we received an unrecognized blessing.

Over the past weeks, I have received so many blessings I can't imagine listing them all.  Many of those blessings came from people who I would least expect.  I am so thankful for the blessings God has put before me recently, but more than that, I'm thankful for the new ability to recognize how blessed I am.

I've gained so much strength and faith through this experience.  I could have never imagined that such a horrible time in my life would end up being the biggest blessing of all, in so many ways.

I've said many times that I am a lucky girl.  A friend of mine recently reminded me that I'm not lucky................I am BLESSED!

I hope to continue to write more about my experience as I get settled at home and become stronger.

Right now, I just want to thank everyone who took the time to pray, help, listen and be there for me.  You will never know how much those small gestures mean to me.  THANK YOU!

Monday, April 2, 2012

Let Go and Let God!

One of the toughest things I have had to learn over the past weeks is how to let things go.  By nature, I have always wanted to "fix" the people and things around me. 

One of the first things my GI doctor told me when he gave me my original test results was "It is important for you to make yourself a number one priority." I thought I'd know how to fight for myself because I'm so good at fighting for others, but it hasn't been that easy. I have no idea how to put myself first.

Not once have I felt sorry for myself during this time.  I've tried to stay positive and make the best decisions in order to get through this and on the other side of it.  I am amazed and so blessed to have the wonderful support and the many prayers from friends and strangers.  Its overwhelming to say the least.  It has also been difficult to accept this outpouring of support at times.  If you have known me for any amount of time, you know that I am very hard on myself. No one loves beating myself up more than me.  I'm better at it than any of my enemies. There have recently been times that I have thought I don't deserve all of the support because what I am going through must surely be God's way of punishing me for all of the "bad" things I have done in my life.  A part of me feels that this is my sentenence for my past mistakes both big and small.  That is the part that has been so difficult to let go.

I have made so many mistakes in my life. I have hurt people and I have been hurt.  I'll bet there is not a person out there who hasn't made mistakes becuase none of us are perfect, but I beat myself up forever over my past mistakes - big or small. 

I'm trying to learn that I've punished myself enough for my past mistakes and now its time to let it all go and move forward.  I am a good person.  I am a caring person and I deserve the best chance in the world to get through this illness and live a healthy, happy life.  If someone believes otherwise, its time to remove them from my life, pray for them and let it go.

As tomorrow approaches, I can't help but be nervous and scared about my future.  I honestly don't know what the next days, weeks and months will bring but I do know I've made the best decision I can for my health and well being in hte long term and now I have to put the rest in God's hands.

I have been blessed in so many ways recently and those are the thoughts and blessings I'm choosing help to carry me forward.  The next days and weeks will require every ounce of strength I have and negative thoughts and hurtful people can no longer have room in my head and heart.  Its time for me to learn that I cannot fix everything and everyone around me so now I'm concentrating "fixing me". 

One of my former co-workers gave me a tiny box with several dolls.  They are Guatemalan Worry Dolls. The legend is that people in Guatemala, especially children use the dolls to help shed their worries.  You tell each doll one of your worries, then place the doll under your pillow before you go to bed as you say a prayer.  The doll will take away your anxiety for that worry and leave you to sleep peacefully waking the next morning with the worry behind you.  I will be sleeping with the dolls under my pillow tonight.



I have felt the love and prayers each day as I approach my surgery and it helps me let go of all the other stuff.  I know that God has this and the only thing left for me to do is be ready to work hard at recovering so that I can live a full, meaningful life.  Tomorrow is my second chance to begin a new "normal".  I'm ready.

Psalm 55:22 Cast your burden on the LORD, and he will sustain you; he will never permit the righteous to be moved


Tuesday, March 13, 2012

Cancer Sucks - Life Interrupted


My first experience with cancer was during my teen years when my grandmother was diagnosed with breast cancer.  Eventually, the cancer spread to the bones and although she fought a long hard battle, cancer won the war.  I didn't really understand what cancer meant at that time but I knew I hated the word.  At 17 years old, I drove my Nanny to Pinehurst and waited while she had chemotherapy treatment.  I'll never forget how sick she was and how hard she battled for her life during that time.  I'll also always remember the last time I saw her and how much it hurt to lose someone I loved so much before I was ready.

My next personal experience with cancer was when my aunt was diagnosed with a form of leukemia.  She battled cancer for years and thought she had beat it several times.  I thought if anyone could win against this disease it was Faye Carpenter.  She was the toughest person I knew, but in the end cancer won the war.  This time, I watched cancer take an emotional toll on my daughter when she lost her favorite aunt and someone who she had such a close relationship with.  That was one of the most difficult times of our life and I prayed I would never again have to see my daughter experience the pain of knowing someone she loves has cancer.

Almost a year to the date of my Aunt Faye's death, cancer deicded to attack my family again.  This time the battle is with me.  Now, that word I hate so badly, the word that has taken so many of my loved ones is now trying to take me on.  If you know me, you know I often joke that things rarely go "my way".  I seem to have to fight harder than most for everything and my life has been one hard knock after another.  Some of this is my own fault and the result of bad decisions and some of it just dropped into my life for reasons unknown.  I've often complained that my life is difficult, that I have to fight for every little thing and that I always seem to need to work harder than most for much less.   I know now that was God's way of making me strong and preparing me for this battle. 

For as far back as I remember I have worked 2 jobs, sometimes 3 to support my little family.  I always took for granted the thought that things were going along well, that I was making it and my life was "working".  I never realized that things were fine as long as every little thing went as planned without interruptions or unexpected problems.  Every once in awhile a little snag would come along but I was able to figure out a way to get by and keep moving forward.  Then came cancer.  I'm learning that cancer is nothing like the little snags in my life plan I have experienced before.  Cancer tries to not only destroy your body, but your financial state, your emotional state and the entire life you have taken for granted.

I hate that cancer is making my life so difficult.  I hate that it has interrupted my plans and taken away my ability to make decisions.  I know I'm going to need to get past the anger of how this disease is trying to destroy my life and I'm going to learn to handle this and keep battling.  I can learn to be tougher than I was.  The one thing I hate more than what cancer is doing to me is having to watch what MY cancer is doing to my family.  I can handle just about anything.  I can deal with what cancer is trying to do to my life, but when I see cancer hurt my family it makes me more angry than anyone can imagine.  

I have always tried to take care of the people in my life.  I try to make everyone happy.  It bothers me when people around me are sad or in need.  This characteristic has gotten me in trouble more times than I'd like to admit, but its my nature and I'm not sure it will ever change.  I don't really know how to put myself first or take care of me and that will probably be one of the hardest lessons throughout this.  I want to make everything OK for the people I love.  I feel a tremendous amount of guilt when I see the burdens they are dealing with because of me. I'm not sure how to deal with those emotions. I don't like that cancer is trying to take over my life but I HATE that it is trying to destroy the happiness of the people I love the most.

I saw a poster recently with 2 powerful words - "Cancer Sucks".  That about sums it up.  This disease is evil and can strike anyone without notice, but it doesn't stop with the one whose body it invades.  It takes over the lives of everyone around its target and for that I hate cancer!

Wednesday, March 7, 2012

I'm a Lucky Girl!



The past week of my life has been a roller coaster ( I don't like roller coasters by the way).  One minute I'm scared, the next I'm brave.  One day I'm hopeful, the next I'm angry.  I can't seem to contain my emotions and they can swing in any direction at any given moment without notice.  People say its normal to go through a range of emotions when you are diagnosed with a horrible disease, but that doesn't make it better when you're in the middle of the storm.

Lately, the fear that I may miss out on some of the life I've planned has been constantly on my mind.  It makes me bitter to think that I may not be able to live to see all the good things I had planned or I thought may happen in my future.

Today I have decided  to temporarily let that fear go.  Instead of worrying about the things I may not enjoy in the future, I'm going to list some of the great things and experiences I have already been blessed with in my life.  I have been sad when thinking about what cancer may take from me and its easy to forget all of the wonderful things I've already experienced when my heart is full of fear.

But in my 40+ years, I have had lots of great experiences and I know if for some reason I don't pull through I have had a blessed life.  I'm a lucky girl!

Things that have made my life full of happiness, fun and adventure.

I am a mom!  - I have the most wonderful daughter any mom could as for.  We have such a special bond because its been just the two of us for her whole life.  This is absolutely the best experience of my life!

Pilot Lessons - I took flying lessons and learned to fly a plane.  I never got my license but if we were in a plane and there was an emergency I could probably remember how to get us back to the ground, hopefully alive with only some minor injuries. :)

Lived in Atlanta Georgia - After high school graduation I moved to Atlanta Georgia for awhile.  This was such a wonderful experience for someone who had never been more than 100 miles from home.  I learned so much about being independent.

Washed Elton John's dishes - He used to fly into Pinehurst when I worked at the airport.  I washed his dishes from his private jet when he stayed overnight.  I only broke 1 plate!  (which I'm sure cost more than my entire dinnerware set).

I was a parrothead - In my 20's I loved going to Jimmy Buffett concerts and became a parrotthead. I listened to Buffett the whole time I was pregnant and Abbi now loves his music and knows all the songs.  She can't wait until I take her to see him in concert.  That will be fun!!

Bermuda - One of the most beautiful places I've ever visited is Bermuda.  I've been 4 times and would go back in a minute if I had the chance!

I still attend the same church I grew up in.  The comfort I feel when I walk through those doors is a great feeling.

My best friend form childhood is still in my life.  We have many different friends and interests now that we are adults but I know she is always there and when we see each other after any amount of time it seems just like yesterday we were chasing frogs and swimming in the pond on a Sunday afternoon. 

Travel and Culture - I had the opportunity to travel to many places in my 20's.  It was such a great experience and taught me not only about geography but also culture.  Every place I visited I made sure to meet someone who lived there. Talking to local residents made my travel experiences so memorable.

Barbados and Maxi Priest - I visited Barbados and ended up in a tiny local bar as one of only 3 tourists.  Maxi Priest was visiting friends and just happened to be hanging out there.  He ended up singing.  It was right before his songs started being played on mainstream radio.  I've loved Maxi Priest since then.

Cruise Refugees - On a cruise to Mexico/Key West during the early 90's our ship picked up several cuban refugees on makeshift rafts trying to get to the US coast.  While the ship saved many, there were more rafts, tubes and other floating devices left empty from people who didn't make it.  That was an experience I'll never forget.

I met George Bush (the first one) at the White House -  I was chaperoning a school group and we were outside the fence at the White House lawn.  Suddenly, the President, Mrs. Bush and another couple just walked down to the fence and talked with us.  The kids were so excited and surprised.  It was great!

New Year's Eve in Cancun - I literally flew to Cancun on New Year's Eve for a party at a hotel and flew back the next day!

Spring Break with the girls - Last year, I, Abbi's friends and a couple of the moms had a girls getaway to the beach during spring break!!  We had a blast and laughed until our belly's ached.  I will never forget that special experience and I hope we get another chance to do it again!

Disney World - Our whole family went to Disney over Thanksgiving.  Many of the ones who went are no longer with us. It was 17 years ago and my dad still won't let us forget he didn't get to see the polar bears at Sea World because he had to hold Abbi who was only 6 months old.

Experienced a Broken Heart - This may seem like a strange thing to have on a great experiences list.  My heart has been broken more than once, and I wouldn't wish multiple borken heart on anyone.  However, I think that when your heart is broken once, it prepares you to never take love for granted.  You appreciate love more the next time because it helps your heart heal.  So for this, a broken heart was a good experience because when I fall in love next time, I will value it more.

I learned to take up for me and be strong when I wanted to give up.  (That skill should come in handy now).

Stood up for Abbi when she needed me to.

I still have both my parents with me.

I met Bob Ritchie (Kid Rock) - twice!

I met John Daly - Not sure if he was drunk or sober but he was so funny.  I have a soft spot in my heart for him and I'm still pulling for his next comeback!

Visited New York - Everyone should see NYC at least once in their life.

Saving Sam - Our dog Sam taught me so many lessons.  He showed up wounded and almost dead.  I never cared much for pets, but couldn't stand to see this sweet puppy suffering.  We saved his life and he became a member of our family.  Sam taught me to love animals more than I ever imagined.  He also gave me the gift of having compassion.  I miss him dearly, especially now when I wish he was snuggled up with me comforting me like he used to do.

Senior Computers - I was given the opportunity to teach a computer class for senior citizens recently.  I wasn't sure how it would go, but it turned out to be one of the most rewarding experiences of my life!

Getting healthier - In the past 2 years, I have lived a healthier lifestyle than ever before in my adult life.  I've lost weight, worked out and gotten stronger.  I know now it was God preparing me for the battle I am now facing!

I will be adding to this list in the future, but I realize now that no matter what the next weeks bring....I have lived a full and wonderful life with so many unique experiences and I am lucky!









Monday, March 5, 2012

Losing Normal

Today has been a tough day.  When I started living healthier, one of the things I remember reading was to approach Monday in a new way.  I've tried to do this since I read those words.  Instead of seeing Monday as an end to something, I try to see it as a new chance for a fresh start.  I am not always successful at this positive outlook when the alarm goes off on Monday morning, but I think its a good philosophy to try and live by.

I went back to work today for the first time since being diagnosed.  I thought a return to something normal would be positive.  But as I drove to Laurinburg this morning it became increasingly evident that doing normal things would not bring normal back into my life.  At least not the normal I once knew.

For the past 24 hours I have had increasing physical pain for the first time since being told I have cancer.  At first, I could pretend it wasn't actually a part of my life.  I felt healthy and had no evident symptoms even though I knew from pathology, PET scans and doctors there is a tumor in my esophagus.  As long as I felt good physically, I could pretend everything is "normal".

Today as I worked at my desk, it became clear to me "normal" as I knew it is gone.  A constant ache in my chest and back reminds me that I am not as healthy as I thought I was months ago, when I was working hard to lose weight and get stronger.  My anemia is getting worse and that makes me weak and tired.   By the middle of the day, I could barely hold my head up and was exhausted just walking to the bathroom.  This is difficult for me as I was proudly doing 8 miles of cardio at the gym just a few months ago. 

I worked so hard to get healthier, stronger, happier than I've ever been in my life and it has all been taken away from me.  Its like I was given a taste of everything I've wanted for years, I felt how happy and confident it would make me and then I was punished by having it ripped out from under me in an instant.  Like some cruel joke it was replaced with this thing called esophageal cancer.  That makes me angry and I want so badly to understand what I did so to deserve this!

When I finally got home from work today, I was mentally drained and physically weak. I sat down and cried in front of Abbi for the first time since this happened.  I've tried to be so strong for her because this has changed her life as much as it has mine. She should not have to lose her "normal" because I have cancer.  No matter what happens, my instinct is to take care of her first and then take care of me, but as she stood over me rubbing my head and telling me it would be alright I realized how cruel and unfair life can be.

I know that I have to stay strong and positive if I am going to beat this and I pray tomorrow will bring back my fighter instinct, but tonight I hurt both physically and emotionally.  I've lost my normal and that pisses me off.

Sunday, March 4, 2012

Lessons I've Learned From Cancer In One Week

 It has taken a few days for the diagnosis to sink in.  At first I thought they possibly had my pathology results mixed up with someone else.  Every doctor I spoke with in the first days of this journey would tell me how surprised they were with the pathology.  I heard over and over how this type of cancer is generally found in older men, drinkers and smokers.  I am not a man, don’t smoke and only drink occasionally.  I refuse to call myself old so surely the pathologist confused my results with someone else. Maybe there was some poor old 70 year old man out there with cancer who didn’t know it because he had received my pathology results.  That could happen right?

During my first visit to UNC Hospital, I knew I was there because I have cancer but the radiology nurse was the first one to actually use the words “You are here because you have esophageal cancer.”  I think she was afraid I might hit her when she said it.  It was like she had just slapped me in the face without warning.  I had spent the past week reading everything I could find on the subject and I was ready for what they would tell me, or so I thought.  I handled myself well in the consultation.  I didn’t cry or scream or even throw things.  I listened to the doctor’s advice, the plan for treatment, the procedure of the surgery, recovery, after treatment and how it would change my life afterward.  I was composed as we talked about what to expect.  I was calm when I explained it to others during the next days.  It was almost like I was explaining the situation of someone I knew, not my own diagnosis.

Then the reality hit me yesterday.  I’m not discussing the condition of a friend.  This is me, my life, my diagnosis, my cancer, my fight. Cancer is inside of my body and it is trying to take me down.  I hear about someone battling cancer almost everyday.  It affects everyone I know in some way.  When you hear a friend or relative has been diagnosed you hurt for them, you want to help, you say you are sorry and you think you understand……but yesterday I realized I never really understood until it was me.

I am just beginning this battle.  The doctor’s have been honest in saying this is going to be a difficult battle.  Esophageal cancer is a tough one because you pretty much need your esophagus to live and they are removing mine.  I have a long way to go, but in the past week I’ve learned my first lessons from cancer.

 25 Things I Never Knew Before Cancer


  1. Cancer is just a word for something going on in your body.  It doesn’t define who you are.
  2. It is ok to be scared.  Cancer is a scary word.
  3. It is ok to be angry.  Cancer can be a bitch and you have to learn to be a bigger bitch.
  4. People want to help, but you often don’t know how to let them. You have to learn to accept help.
  5. When you are diagnosed with cancer, your whole family is diagnosed.
  6. You will find friends and support in people and places you never imagined.
  7. Some people will disappear and that’s ok.
  8. The things you worried about the day before you had cancer don’t really matter so much now.
  9. The people who didn’t like you for whatever past reason don’t really matter now.
  10. Life doesn’t stop because you have cancer.
  11. Doctors don’t always agree with each other so you need to use your instincts about your body and ask questions.
  12. Prayer works, even when others have to pray for you because you are angry with God at the moment.
  13. Sometimes people ask strange or stupid questions, but they are just curious.
  14. Sometimes people say strange or stupid things, but they are just confused.
  15. Anybody can get cancer. Cancer is not picky.
  16. Everyone makes mistakes, nobody is perfect.
  17. You aren’t guaranteed tomorrow, so you’d better get everything out of life you can.
  18. Life is too short to not take chances.
  19. You can be replaced at work when you aren’t there, no matter how invaluable you think you are.
  20. You never know how much you love someone until you realize your time with them may be limited.
  21. Pathology and ultrasounds usually don’t lie.
  22. Doctors sometimes struggle with telling you that you have the “C Word”, no matter how professional or smart they are.
  23. You never know how strong you are until you have to gather all the strength you have to get through a storm.
  24. You are loved no matter how many times you have felt unloved.
  25. You can fight harder than you ever thought when you have no other choice.  You can beat cancer.

I’m sure there are more lessons to come and that’s ok.  I’m learning I can handle much more than I ever imagined because I have the best family, friends and support in the world.

Saturday, March 3, 2012

My Bucket List

When the movie The Bucket List came out I decided to write my own bucket list.  I had just come out of a pretty bad time in my life and felt a renewed sense of wanting to live and be happy.  I sat down one Sunday afternoon with a yellow legal pad and began writing.  Afterward, I put the list in my wallet but never actually started checking things off.  I was busy with everyday life and I had plenty of time to revisit my list.  After all, those men in the movie were old!

Over the years, I've come across the list when I change purses or have to look for some long lost card in my wallet.  I'll pull it out sometimes and read it then tuck it back in its spot with the promise that "one day I'll start checking those things off my list".  When I recently went to the doctor for my procedure that would ultimately find cancer I saw the tattered and worn piece of yellow paper when I was looking for my insurance card and thought I should look at that list again when I have time, it has been awhile.

My Bucket List
Over the past 3 weeks I have looked at this list almost everyday.  Before, it was just a silly list of things I'd like to do before I die.  Now, suddenly it seems so much more important.  Instantly with the diagnosis of cancer that silly "to do" list has become the list of things I may never have a chance to do.  It is a list of things that are important to me and things that I have often taken for granted.  The list includes life changing things as well as silly insignificant things but suddenly everything on that list seems to have an urgency.  I've wasted years with the list in my wallet just sitting there waiting for me to decide something on it is important.  I've taken the list for granted thinking I have plenty of time to begin checking things off.  Now there is a chance that many of the things on my list may end up without a check beside of them.  I pray that I am able to stick around long enough to put checks beside most of the important things on my bucket list, and suddenly every little thing on that is has become important.


My Bucket List

  • Fall in love with someone who is in love with me and doesn't want to live without me.
  • Sit on the front row at my daughter's wedding
  • Watch Abbi graduate from college
  • Figure out a way to pay for Abbi's college
  • Have money in my pocket and in the bank on payday
  • Have a savings account for emergencies
  • Write something that is publised for others to read and enjoy
  • Become an author
  • Find my passion and figure out a way to make a living at it
  • Finish my college degree
  • Get married
  • Spend a week in an oceanfront house at the outerbanks with nothing to do but listen to the ocean
  • Play with my grandchildren
  • Make ammends to someone I have hurt
  • Forgive someone who has hurt me
  • Get a tatoo
  • Live at the beach
  • Own a real designer purse that I buy in a store
  • See my mom reconnect with 2 people she hasn't seen in many years but have never left her heart
  • Reconnect with those 2 myself and tell them that I never stopped loving them
  • Believe in something spiritual
  • Visit a palm reader
  • Learn to stand up for myself
  • See a manatee up close
  • Learn to ballroom dance
  • Outlive my parents and take care of them when they need me to
  • Have a closer relationship with my brother
  • Have a closer relationship with my sister-in-law
  • Accomplish something I'm proud of
  • Ride really fast in a race car
  • Own a BMW
  • Have a car without having a car payment every month
  • Go to New York with Abbi - we both love it, we've both been, we need to go together
  • Find my soulmate
  • Reconnect with childhood friends
  • Witness a miracle
  • Finish my college degree
  • Only have to work 1 job to be able to pay the bills
  • Be with someone who will take care of me when I need them to
  • See Abbi meet her father
  • Go on a cruise with my entire family
  • Be skinny but healthy
  • Boob lift :)
  • Botox when needed and never apologize for it
  • Have a reunion weekend with my childhood friends like we've always talked about but never actually been able to accomplish
  • Hug someone who needs it
  • Swim with dolphins
  • Have perfectly straight, white teeth
  • Go to the top of the Empire State Building
  • Sleep on the beach
  • Not worry about having enough money to pay my bills
  • Retire from my job and start a "career"
  • Have someone to come home to everyday
  • Know in my heart I've tried my best at something, even if I fell short of the goal
  • Be content and happy with my life and know I've gotten every ounce of living out of it

I've carried this list with me for years. Cancer decided to add itself to my list without my permission.  I'd better get busy so that it is not the only thing on my list with a check beside it!



Friday, March 2, 2012

An Instant Changes Everything

One week, one day, one minute, one second.  Everything can change in an instant – without warning, without control. 

Writing for me has always been comforting and therapeutic.  When I first started writing this blog it was going to be about my journey to live a healthier lifestyle, lose the excess weight, gain my confidence and live a better life. It would be a way to keep me accountable to myself for my progress. I never imagined how much things would change in just a few short months.  Now I’m writing about fighting a battle I never imagined I would- - - - fighting for my life. 

In June of 2011 I suffered from extreme anemia.  I was tired and weak all the time, not to mention freezing to death in the middle of a hot summer.  The doctors thought it may be female related problems and I spent the next 3 months visiting the gynecologist for more testing than I could imagine.  In the meantime, I came to grips with the truth that any physical problems I may have could probably be attributed to my extra weight and unhealthy lifestyle so I decided that at 43 it was time to change things.  In August, I joined the fitness center with Abbi and began exercising.  After I realized how my energy levels were beginning to rise and how much stronger I became I began eating healthier.  All of these steps came as a surprise to me because I’ve tried a thousand times before to live healthier but never seemed to stick with it for any amount of time.  This time seemed different; It was easy, I was motivated like never before and I had no idea why but I kept going.  I became an inspiration to many of my friends and acquaintances and was amazed at the positive messages I received.  It kept me focused and as the weight came off I felt  and looked better than I ever have.  
However, I still had this nagging anemia problem that would not seem to go away.  Dr. John Byron finally decided the problem was some sort of internal bleeding and it was more than likely a bleeding ulcer.  I have suffered with chronic acid reflux for years and the symptoms of an ulcer could be confused with the reflux.  He referred me to Pinehurst Medical Center and I was scheduled for a colonoscopy and endoscopy.  For the next weeks, every time I thought about the steps to prepare for that colonoscopy I almost canceled.  Dr. Varanasi said the procedure was just a precaution and he didn’t expect to find anything.  I was assured that we would probably be treating an ulcer when all was said and done.

On Monday, February 13th I had the procedure.  I woke up that morning feeling uneasy and remember calling my cousin to talk about my sense of something being “wrong”.  I just felt uncomfortable about the whole thing.  She reassured me that I was in just a nervous wreck (as usual) and things would be fine so I headed to Pinehurst.  I met with the doctor, fell asleep and woke up an hour later feeling relaxed and rested thanks to anesthesia.  I don't remember anyting about the procedure except there was GREAT music playing in the room while it began.  When the doctor walked in I was expecting to hear, “All is well, we wasted our time and see you when you are 50.”  Those weren’t the words he had.  He said he found polyps in my colon that were pretty large and concerning for my age.  He removed them and would be sending the biopsies for testing.  He also began to explain some problems he found during the endoscopy.  There were some concerning places in my esophagus that he biopsied.  He explained a condition called Barrett’s Esophagus which develops over time in people with chronic acid reflux.  This condition is normally found in much older men and he assured me it was probably nothing to worry about.  As I left I was told the pathology report would take about 7 days and I’d receive a phone call or a letter with the results.  I know enough about pathology to know that you always want the letter instead of the phone call.  I went about my life as normal and didn’t think much about the impending report.  When a week passed I figured I was in the clear and I should be receiving my letter soon.  The letter never came.

On Wednesday, February 22nd I received a phone call on the way home from work from Dr. Varanasi.  I knew it wasn’t good because the call didn’t come from a lab tech or even a nurse.  It was the doctor on the phone and his voice sounded different than I remember.  He told me he had a few difficult things to talk to me about.  He explained that the polyps were precancerous and it is very unusual for someone my age to have this type of condition.  He said he was confident he removed them all and I would need a repeat colonoscopy every 3 years. Ok, so that wasn’t great news but I could live with that as the bad news.  Then he paused and asked if I could pull over on the side of the road.  That was the moment I realized my world was about to change forever.  I don’t remember much about the conversation after that.  I heard phrases and words but had a hard time comprehending them – the bits I remember included positive for Barrett’s Esophagus, rare for my age and gender, not a good prognosis, survival rate is low, more testing would be done, biopsies, high grade dysplasia in every biopsy and suspicious cells, but I couldn’t put all of those words together to make sense.  Then he said the dreaded words “this is difficult to tell you and I’m shocked with these biopsy results but I suspect a possibility of esophageal cancer and we can’t treat it in Pinehurst.  We will refer you to UNC Hospital.”  The fear that set in at that instant is indescribable.  I couldn’t speak, couldn't breathe and couldn’t get the thought of death out of my mind.  I don’t even remember driving to my parents’ house, I barely remember walking in the door but I do remember standing there with my arms around my mom for what seemed to be forever.  I couldn’t even say the words - esophageal cancer.  It took me so long to just get it out of my mouth. 

The next day I had an endoscopic ultrasound performed by Dr. Eric Frizzell.  When he came into the recovery room, I knew by the look on his face it wasn’t going to be news I wanted to hear.  He confirmed the pathology and found some problems in my lymph nodes.  I would be referred to UNC and more than likely my esophagus would have to be removed.

I began my battle with this vicious disease yesterday, March 1st with my first visit to UNC Hospital. In an instant, I'm no longer working to get healthier, skinnier or be able to fit into a certain size jeans.  Now, I’m fighting to survive.  My life changed without warning and I had no control over that.  Everything I had worried about before, everything I was used to doing, everything I took for granted was gone in the blink of an eye.  None of it matters anymore and the only thing that matters is staying focused on battling this monster and living for as long as I possibly can.  For the first time in my life I am thankful for today because I finally understand the feeling of knowing there may not be a tomorrow.

In the past few days cancer has already taught me some valuable lessons.  It has taught me that I’m not alone in this battle.  Almost everyone I know has been affected by this disease in some way.  It has taught me that the things I worried about before are insignificant.  It has taught me that I have so many friends and supporters even though I’ve often felt alone in my life.  It has taught me that my family is amazing support and I’m so lucky to have them.  It has taught me that I have people I can lean on and I don’t have to do everything alone, which I’ve always tried to do.  It has taught me that I’m stronger than I ever imagined but I need to get stronger because I’m fighting a monster.  It has taught me that people I never imagined cared if I was around actually do care.  It has taught me that prayer works and the power of many prayers is amazing.  It has taught me that I love my life more than I thought and I’m not ready to give up on it.  It has taught me that I have too much to lose to sit around and let some tumor take everything from me.  It has taught me to be appreciative of the things I have.  It has taught me that being selfish is sometimes necessary.  It has taught me that life is precious and we are never guaranteed tomorrow.  I’m sure cancer will teach me many more lessons in the upcoming months and that’s ok because I am going to teach cancer a lesson too.  I’m going to teach cancer that I am a fighter and I have too much to live for to just give up and let it win this battle.  I intend to give everything I have to win this war and live a wonderful, beautiful, healthy, LONG life.